Another long and difficult day in clinic. The mouth and throat sores are back in full force, and the nausea medicine is no longer working as well as it did. Tyler is rating the pain as the worst since this process began 6 weeks ago.
The largest tumor (which turned out to be 3 tumors) has reduced significantly (praise God for that). In their place, they left a very damaged section of intestines. We do not yet know how damaged, or if there are perforations, but it is causing a us a lot of concern. I believe that is where a lot of pain is coming from. Tyler is also still losing weight, losing another 3 pounds since he left the hospital on Friday.
The good news is that Tyler's blood counts are holding strong so far. They are actually very good, helping to give his body some strength in fighting this disease and all the side effects of the chemo. His heart and blood pressure are also very strong. This is why we were able to come back home today.
We already had our Christmas yesterday morning, so this is a very welcomed surprise. We plan on spending this Christmas morning just sharing and telling stories as a family. We are a big story telling family. It helps keep a lot of our best memories alive. The other day we were all sitting around telling stories, and Erik told us about a bad dream he had. We all then started telling stories of weird or scary dreams. Then, from under the blanket on the sofa, came Tyler's gravel voice saying, "Try having dreams on morphine...now those are freaky". We all got a big laugh. Just another one of those statements that, only 6 weeks ago, I would not have believed I would ever hear from my son.
We would like to wish everyone a very wonderful and joyful Christmas day. We would like to thank all of those who have done so much to make this trial a little easier. We are continually humbled by all those who have been so kind to us. It all means so much to us all. As I was writing this post, I got a strange phone call saying there was something in our driveway, which turned out to be a large Christmas wrapped box. I do not know what is inside. We will let the boys find out in the morning.
Just because it is too cute.