Friday, January 25, 2008

Turning The Bend?

Tyler had his first "uneventful" night last night. No urgent visits from the doctors, no worried nurses, no unexpected alarms. Nothing but quiet (for the most part).

Temperature is down to around 101-102. The spikes in temperature are fewer.

Blood pressure is up to around 40-55. The drops in blood pressure are fewer.

Platelet transfusions are continuing, but the red cells are strong and the blood transfusions have been stopped.

White counts made their first upward move, and are now at 0.2.

The mouth sores are almost gone.

We met with the doc's again last night. They are still very pleased with Tyler's progress. Then we got to the issue of all the side effects. Dr. Gross, who runs the oncology department, said that it was impossible to over emphasize the intensity of Tyler's chemo protocol. This protocol is the most aggressive treatment in existence. Nothing else in oncology compares to the side effects of this regiment. But it is the most effective way to fight this highly aggressive cancer.

Tyler's response to these statements is always the same. He feels very lucky. He says the good news is that this cancer is hard, but it is fast. He talks about Olivia, who was here for 16 straight months before she could go home. Or Rob, who is currently in ICU after his 3rd bone marrow transplant in 7 years.

I guess it is all a matter of perspective. Cancer is ugly, but in a weird way it does bring a gift. It does change your perspective on so many things in life. I am embarrassed by all the petty issues I used to think were so important.

Right now Tyler is asleep. I am in the teen lounge looking out the window at the parking garage. A bunch of kids just draped a giant banner off the roof of the parking garage. It looks to be about 16 feet x 20 feet, and says "Happy Birthday Sarah!". Sarah turns 17 today, and is receiving a bone marrow transplant. Her room also looks out on the parking garage.

It's all a matter of perspective.


donatelife said...

Glad to hear things are stable. You and your family are very strong.

reneern said...

It is sooo good to hear he had an uneventful, quiet night last night...he needed that:) As ALWAYS, I am thinking and praying for Tyler and your family:)

Renee', RN

Anonymous said...

Thank you for your words and wisdom.Tyler and "you all" are constantly on my mind and in my prayers. Your faith journey is truly inspiring. We miss Tyler here at Jerome. Have a great weekend. - sra.

Anonymous said...

Glad you had an "uneventful" night. I hope that the stats that need to go down, go down and the stats that need to go up, go up. Keep on fighting. Try to get rested up today. I'm...I always say I, but I should say we (my nine-year-old is also praying for you guys) so we are praying for you. Fight to Win!!


Lisa Slonecker said...


Wow, you said it so well. Thanks for sharing your thoughts and feelings.

I understand your outlook about cancer bringing gifts along with torture. I always felt that there was so much good that came from our experience, but it seemed unfair that Jana had to suffer so we and others could benefit from a new perspective and appreciation of life. It's such a quandry of feelings.

And, yes--Tyler and Jana and other patients with Burkitt's are part of the lucky ones who have such an intense but quick treatment and best of all--a very curable cancer. Because it reproduces so quickly, it always made me happy to think of the chemo killing off the cancer cells just as they were getting "settled in". We, too, felt like the lucky ones compared to what others were going through and still are going through.

Tyler seems to be one tough guy and is handling the intensity as well as can be expected. One more round almost done!!

Please remember to take of yourselves. It takes a toll on everyone after a while.

Praying, praying, praying.


Deyerles said...

Dear Tyler,

So glad to hear you got some rest last night. A good night sleep always make you feel better! I hope your Mom and Dad were able to rest. I know they worry about you and probably don't rest as much as they should. Tell them to take care of themselves because they are important to all of us too!

Love you guys,

dmf-dana said...

Our prayer group sent out prayers this morning for your whole family. We have been studying James and I know this is hard to understand sometimes and it may seem insensitive- but I truly believe God has a special plan for Tyler.

James 1:2-4 Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perserverance must finish its work so that you may be mature and complete, not lacking anything.

I want to be clear and say that there is no joy in the trials themselves but joy will be found in the results of those trials.

We will continue to lift you up and pray and pray and pray.

The Mack's

Grandma Bonnie said...


Your strength and positive attitude inspires all of us. Wow - to consider yourself lucky - what incredible insight - cancer does give one vision like nothing else. You go, Tyler. You must be so very proud of yourself.

You also know that God is in charge and the captain of Team Tyler. No way you will not win - Round three is already in your corner.



Grandma Bonnie