Sunday, February 10, 2008

Back in the Battle

Great news! Kylee went home today. Two more rounds of chemo, and she should be done. Yea! Zander also went home today. He is the most cheerful 4 year old I know, and has been fighting cancer almost since birth. Olivia, Nicholas, and Jana (now a teenager!) are home and I believe are doing well with the "typical" ups and downs. Nothing is done until it’s done, so continue to pray for their continued healing.

Please also continue to pray for Brett and Tristan.
Brett is in a lot of pain right now. He has been in isolation for a month. He was allowed out briefly Thursday evening, but is now in too much pain to do so again. The pain, mostly in the mouth and jaw area, has gotten much worse over the past two days. As with much of the process with Burkitt’s, there is no definitive way to determine what is going on. Is this a reaction to the treatments, an unknown infection, or sub-detectible cancer cells hiding in his body?
Tristan is also fighting his relapse of Burkitt’s. His treatments are on hold because of an infection causing a temperature of 105.

Sinjin is also having a very difficult time with his relapse of Burkitt’s. He was rushed to the hospital today. As they were taking Sinjin to the car, the family was trying to get his dog to get into the house so they could leave. They then saw his dog had just been struck and killed by a car.

It appears Tyler is back in the battle. His feet are beginning to turn red again. Just yesterday Tyler made his first trip with the physical therapist, taking a lap around J-5. Today the burning in the feet is so severe Tyler is unable to stand. The night doc was called in and ordered ice packs on Tyler’s feet. His temperature is on the rise (not bad, but moving up), so blood cultures have been taken to see if an infection is back. The nausia and vomiting have increased.

So far it is not as bad as last time. The doc’s believe the chemo drug ARA-C was likely the one that caused most the problems last round. Therefore, this round ARA-C was reduced to a half dosage, hoping to eliminate the most severe of the side effects. I asked how reducing the dosage would affect the prognosis, and the short answer is they do not know. They also do not know if this decision will reduce the side effects. However the doc’s believe ending treatment mid-round due to complications would create more problems than reducing the dosage up front. Therefore it was determined that this was the lesser of the potential problems.

Please keep all of these young people in your prayers.

"Looking through my living room window, I suspect being outside would feel wonderful, but I really wouldn't know. As I write this from my bed, my entire body feels saturated in a sticky, toxic nausea, with chemotherapy pumping through my 18-year-old veins. Like Michael Jackson's moonwalk, chemotherapy has this strange way of moving a person another step towards life and death at the same time.
Twenty three months ago, I was diagnosed with stage IV rhabdomyosarcoma, a rare pediatric muscle cancer affecting only 350 children a year. With odds like that, and with a 20 percent chance of survival, I can only deduce two possibilities about the universe: God's plan is evident in every little shifting of the breeze, or it's totally random. I don't see how there could be much middle ground."
--Miles Levin

We are pressed on every side by troubles, but we are not crushed. We are perplexed, but not driven to despair. We are hunted down, but never abandoned by God. We are knocked down, but never destroyed.
--2 Corinthians 4:8,9


deyerles said...

Dear Tyler,

We are praying for you and are so sorry you are suffering. Be strong and fight hard!
We love you.


Lisa Slonecker said...

Hello Alfriends,

Tyler, I am so sorry you are suffering the side affects of ARA-C again. We were praying for you to escape the worst of it this time. I have no advise--just give into the pain, take the meds that can help in any way, and hang in for the upswing. We'll pray for the upswing to happen very, very quickly.

Kyle--Thanks for including Jana in your message. We talk about Tyler a lot and will some day meet up in person! I can't imagine how scary it is to have Tyler veer from the protocal. You just have to have faith that the Drs. are doing what's best. We will continue to pray for the wisdom of the medical staff as they make the decisions for Tyler's care. We will pray extra hard for you and Kathy for strength and faith as you sit by helplessly while Tyler suffers through yet another round. We know how hard that is. Take a break when you can.


The Sloneckers

Anonymous said...

You guys have been on my mind today alot. Just wanted to let you know I'm praying.


Cathy Sankey said...

Dear Tyler,

Just a note to say we are all thinking of you each day here at Dublin Jerome. We are all "fighting to win" for you. Students donated money instead of wearing flowers to the Sweetheart Dance and an author donated some books that we could sell to raise money for your fight. The book is called Thank God for Cancer--Tap your Inner Strength and the author is a cancer survivor. Sorry you are having a hard time right now. "We all carry it within us: supreme strength, the fullness of wisdom, unquenchable joy. It is never thwarted and cannot be destroyed."--Huston Smith

Anonymous said...


We are praying for you to find the strentgh to Fight this beast...God is with you, right there with you and carrying you through.

Hang in there. Fight hard....

A Fellow Dublin Jerome Family