Saturday, February 9, 2008

Update from J-5

So far Tyler has not experienced the side effects he had last round. The pain is stronger, but none of the other things have started. The doc’s now believe the pain medication is the cause of some of the pain, so the pain meds are being scaled back. Tyler is also beginning some physical therapy to combat the leg and muscle pain. Regardless of the pain, he must force himself to get up and move around. It is a pure “no pain, no gain” situation. There is no way around it.

I finally had the pleasure today meeting Step Tarapchak. Great guy. We have communicated by email and blog, but had never met. I love his writings, and he has been a great source of encouragement to Tyler. Stef starts back on chemo next week. Keep him in your prayers, and keep up with his blog. It is listed on our links to the right.

Please also keep Brett in your prayers. His Burkitt’s returned after only 30 days in remission. He went back into chemo, and then received his bone marrow. After a month in isolation, Brett was allowed out of his room for a short time (with mask and gloves on). Brett still has some things to get through, but I look forward to seeing him walk out of here soon.

I had dinner tonight in the cafeteria with Tony, Kylee’s dad. Kylee did hit all her AFP numbers, but the feeling was that they were not quite low enough. The decision was made to keep going with three more rounds of chemo. That is hard news to take, but it is so critical to make sure you have killed every last hidden cancer cell. Kylee will soon be out of here and doing great.

Talking with Tony is always good. We have a lot of wonderful friends, but there is nothing equal to talking with another father who can honestly look you in the eyes and say “I know”. Every one of us would take a bullet for our child. The bottom line is that it is a father’s job to protect his children. The feeling of helplessness is on a level I have never experienced. There are no words that anyone can speak that will change those feelings.

"What cancer does is, it forces you to focus, to prioritize, and you learn what's important. I don't sweat the small stuff. If it weren't for the downside, everyone would want to have it. But there is a downside."

--Gilda Radner, 1946-1989


Kylee from down the hall said...


Thanks for letting me borrow your iPod charger. I would come down and say hi, but I think we can both agree that the longer in to chemo, the less appealing visitors are. I hope you are doing alright.

Lisa Slonecker said...

Hi Tyler!

You are never far from our thoughts and prayers. We are hoping you sail through this round with good pain control and less complications. Keep taking it one day at a time. You will beat this thing!

The Sloneckers