Wednesday, March 12, 2008

Doing Great in Round 5

Tyler is feeling very strong. He spent a bit of time in physical therapy on the treadmill and stair climber. I was then sent out on a Chipotle run. After that Tyler wanted to slip back into the physical therapy room without the therapist. He wanted to push his limits on the treadmill, and the therapist was holding him back. So we went back down there, and he got up to 5 miles per hour (12 minuet mile) and held the pace for about 80 seconds. Very impressive for a young man who could not walk on his own not to many days ago, and had surgery yesterday and multiple rounds of chemo for the past three days. He is still working on getting the coordination back in his legs, and said he can go much longer as soon as that comes back. Fight to win.

Tyler has fought off the side effects very well so far. The main focus is his methotrexate levels. Methotrexate is a drug Tyler is receiving, but that nasty stuff can not be allowed to stay in his body for very long. Right now the levels are about 10 times higher than where they need to be. Round 5 will be completed soon. If the side effects hold off and the methotrexate level come down, Tyler could be looking at coming home by Friday.

We are still waiting for the final results of the spinal tap.

A lot of new families have shown up on J-5 during the days we have been at home. I still remember when we first arrived on J-5 four months ago. I walked around feeling like a zombie as the avalanche of information continued to be thrown at us. Like the Bob Dylan song, everything seems to be moving too fast and too slow at the same time. Today I saw that same look in several parents eyes. It is so painful to see that look in their eyes (not a lot of fun when it was in my eyes either). I talked to a couple of them, but I doubt they will even remember it. One just began crying when I asked if they had a son or daughter here.

There are bad days and good days. You just do your best to take one step at a time. Cancer will never allow you to see very far into the future. You fight, because that it what you are supposed to do. And you hope, because there is always hope. And you pray, and you love, and you take one more step. There is no magic formula.

Cancer is ugly, raw, and barbaric. I wish it was different, but it isn't. Every one of these people are hero's in every sense of the word. Thank you for your prayers and words of encouragement.


Anonymous said...

Tyler, keep up the fight. I'm still waiting to hear that you got to the top of the Sears Tower. Fight to Win! We're still praying for you.


Anonymous said...

this is great news! have you thought about writing a book to share this experience? what a great story you have to tell and the perspective you all could give the world would be very inspiring.

Anonymous said...

Great Job Tyler! I am very proud of you, you are being extremely strong. Show cancer who's boss. You are always in my prayers. Fight to Win!

Keep Winning
Mike W.

Anonymous said...


We are so PROUD of you!

Fight To Win!


Anonymous said...

Tyler made it to the top of the Sears Tower many posts ago!!!

William said...

Keep it up Tyler and hang in there! Keep fighting! You are winning! We all think of you every day. Michael Rebekah and Lucas ask about you every day. They wear their "Fight to Win" shirts to school a lot to show their support for you.
The Vieth family