This past week Dr Caligiuri, CEO of The James, stepped in with his staff to meet with Children's and help sort through all the options. The result: very good news. The bone marrow and stem cell transplant discussions have been put on hold. The experimental maintenance drugs have been put on hold. Increasingly, the opinion is that Tyler may soon be in remission. It is possible that he is there now. At this point we are going to complete one more round of chemo (the 8th) as soon as Tyler's blood counts come back. And then we are "done". Tyler's very first goal, back in November, was to keep up with school and return to join his classmates for his Junior year. That will now happen. The light at the end of the tunnel is getting brighter.
As we have seen with so many others, relapse is a significant concern with Burkitt's. Remaining in remission for 90 days after the last chemo is a significant milestone. I will be running the marathon just as we are celebrating Tyler's 90 days of "relapse-free remission". Every day beyond that reduces his chance of a relapse. "Cured" for Burkitt's is most often considered relapse free for 12 months after the last chemo. Therefore Tyler enters his senior year completely "cured".
Tyler is now getting blood work done. He will be back a Children's tonight to continue his physical therapy. Citius, Altius, Fortius (Faster, Higher, Stronger - Olympic motto).
Team in Training: Still right on track with the training schedule. Only 446 miles remaining to the starting line in October. One of the trainers told me that just signing up for the training was the hardest part of the training. Not to be critical, but I have a real good idea that is a lie.
On another note: Please continue to keep Sinjin in your prayers. They are currently facing some very difficult choices.