Friday, December 26, 2008

Heroes in the War Against Burkitt's Lymphoma


Most childhood cancers are not very well understood. Sometimes treatment works, and other times it does not. No one knows why. This is especially true of the rare cancers, and even more so among teenagers. Therefore every single child with cancer, regardless of how they respond, adds a wealth of information to the treatment of future patients. We owe so much to those young men and women who fought before us, fought with us, and those who are still fighting. These kids are true hero's.
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With Burkitt's Lymphoma, significant advances have been made with the youngest patients in the earlier stages. In children under age 12, with stage I or II Burkitt's, the survival rates are around 80%-90%. The worse effected are teenagers in the higher stages. Patients between the ages of 15 and 22 with advanced stage IV and leukemia have survival rates in the 5% range. The majority of those effected are boys, and boys have lower survival rates than girls. There has still been no funding to understand why then teenagers have such a poor prognosis. This effect on teenagers shows up in most cancers, but is especially true in the blood cancers of lymphoma and leukemia.
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But at the end of the day, parents only care about two statistics...100% and 0%. Unfortunately, those numbers do not exist in the world of childhood cancer. Therefore every case s new, and every child is unique. Every person who has gone before and fought this battle adds to the survival of others. They are true heroes.
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Below is a short list of hero's in the war on Burkitt's Lymphoma that have impacted our life.


Hero: a: an illustrious warrior b: a man admired for his achievements and noble qualities c: one that shows great courage d: the central figure in an event, period, or movement.


These kids display this definition in every sense of the word.


My son, Tyler Alfriend, my main hero. 6 months in remission. Looking and feeling great, hugging his favorite nurse Jodi.





Hero: 17 year old Brett passed away in March from Burkitt's Lymphoma



Hero: 15 year old A.J. passed away in January from Burkitt's Lymphoma




Hero: Nicholas is now in remission from Burkitt's Lymphoma!









Hero: 15 year old Sinjin is now back in remission from Burkitt's Lymphoma!


Hero: Jana is now 1 year in remission from Burkitt's Lymphoma!



Hero: 10 year old Mason is fighting a relapse of Burkitt's Lymphoma



Hero: 17 year old Brendan passed away in October from his battle with Burkitt's Lymphoma


Hero: Chase passed away in March from Burkitt's Lymphoma





Hero: Tristan is currently fighting a relapse of Burkitt's Lymphoma.




Hero: Cody lost his battle with Burkitt's Lymphoma





Hero: Daniel is now in remission from Burkitt's Lymphoma!


Hero: Gaige is now in remission from Burkitt's Lymphoma!


Hero: Gavin is currently fighting Burkitt's Lymphoma.



Hero: Hannah is now in remission from Burkitt's Lymphoma!


Hero: Jake is now one year in remission from Burkitt's Lymphoma!



Hero: Joe is in remission from Burkitt's Lymphoma!



Hero: Jordan passed away at age 10 from Burkitt's Lymphoma




Hero: Kelsie lost her life to Burkitt's Lymphoma


Hero: 8 year old Michael passed away from Burkitt's Lymphoma


Hero: 10 year old Russell is now in remission from Burkitt's Lymphoma!



Hero: Aaron is now in remission fro Burkitt's Lymphoma!

3 comments:

Michelle Council said...

Praying for another 6 months in remission. Praying for that ultimate cure to be achieved! Please know that we are keeping your sweet Tyler close in our prayers.

God bless you.

Michelle/ Angel Wings

Anonymous said...

"Patients between the ages of 15 and 22 with advanced stage IV and leukemia have survival rates in the 5% range."

Hi Kyle,
You wrote the above statement in your blogsite. It is a horrifying statistic, could you please let us know where you found this information?
Mark Sloan

Anonymous said...

"Patients between the ages of 15 and 22 with advanced stage IV and leukemia have survival rates in the 5% range."
This is not true....it has to be 60-70% as per studies