Friday, June 1, 2012

Childhood Cancer Action Day

With Congress poised to pass sweeping FDA reform, childhood cancer advocates visiting Capitol Hill next week in conjunction with Childhood Cancer Action Day (as part of a program sponsored by the Alliance for Childhood Cancer) are doing so at an especially critical time to present the following issues to legislators:

• New and more effective drugs for children with cancer – Helping to improve and accelerate access to life saving treatments is one of several pediatric drug development provisions included in FDA Reform Act of 2012, which is currently making its way through Congress. For complete details about the requests that advocates are making,
click here.

• Improved treatments for childhood cancer survivors – With more than 350,000 young cancer survivors living in the U.S., and three-fourths of them suffering a chronic condition or late-effect from their cancer treatments, better programs are needed for their follow-up care, psychosocial services, and adjustment to adult life as outlined in The Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act.

• Encouraging members of Congress to work together to help kids with cancer by encouraging House members to join the Congressional Childhood Cancer Caucus, a bipartisan group working to improve the lives of children with cancer.

You can support this effort by sending a message to your members of Congress (and asking your family, friends, and colleagues to do the same). Send a message through the St. Baldrick’s website.

Let’s work together to send thousands of messages to Capitol Hill on behalf of the 13,500 children who are diagnosed with cancer each year in the United States. 

About the Alliance for Childhood Cancer
Founded in 2001, the Alliance for Childhood Cancer is a forum of national patient advocacy groups, and medical and scientific organizations. These organizations meet regularly in Washington DC to share ideas and concerns and work collaboratively to advance policies leading to improved research, public education, and diagnosis, treatment, supportive care and survivorship for children and adolescents with cancer.

Members of the Alliance for Childhood Cancer include: 
American Academy of Pediatrics
American Cancer Society
American Childhood Cancer Organization
American Pediatric Surgical Association
American Psychological Association
American Society for Radiation Oncology
American Society of Clinical Oncology
American Society of Pediatric Hematology/Oncology
Association of Pediatric Hematology-Oncology Nurses
Association of Pediatric Oncology Social Workers
B+ Foundation
Cancer Support Community 

Chai Lifeline
Children's Brain Tumor Foundation
Children's Cause for Cancer Advocacy
Children's Oncology Group
CureSearch National Childhood Cancer Foundation/Hope Street Kids
Lance Armstrong Foundation
Leukemia & Lymphoma Society
National Children's Cancer Society
National Coalition for Cancer Survivorship
Patient Advocate Foundation
Pediatric Brain Tumor Foundation
Sarcoma Foundation of America
Society of Pediatric Psychology
St. Baldrick's Foundation

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